What Happens to my Blood Sample after Prenatal Screening?
Whether to support research is
When you have your blood drawn for prenatal screening through the California Prenatal Screening Program, it can be used later for research to prevent birth defects. This state program
is part of the Genetic Disease Screening Program (GDSP) in the California Department of Public Health (CDPH).
GDSP collects information on birth
defects and is recognized as a model for birth defects tracking (surveillance). It stores blood samples and may use
them to help approved researchers study the causes of birth defects and other
childhood health problems.
CDPH must approve all research studies that
use any blood samples collected by the PNS Program. CDPH follows all state and
federal confidentiality and privacy laws. This means that any patient-identifying
information will not be released for any research studies.
How to say no to the use of your
blood sample for research
You can request that your blood
sample not be used for research when you sign
the consent-to-screen form. You can
do this by asking your prenatal care provider to check the required box on the
If you say “no” to using your blood
sample for research, the sample will be destroyed after your screening result
is complete and reported to your prenatal care provider. Saying no to research
will not affect your health care or screening results in any way.
California law does not allow the
use of screening results by insurance companies or employers to discriminate
against an individual. If you believe that you have experienced discrimination
because of prenatal screening, report it to the Division Chief of the Genetic Disease
Screening Program at the following mailing address or email address: