Chronic Disease Surveillance and Research Branch

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The Chronic Disease Surveillance and Research Branch (CDSRB) is committed to serving the public by collecting statewide data about cancer, Parkinson's disease, and chronic disease risk factors; making chronic disease surveillance data available to public health practitioners and qualified researchers; conducting chronic disease surveillance; and communicating surveillance results to the public. In addition, the Branch provides leadership for, and coordination of, California's statewide comprehensive cancer control efforts based on the concept that people and organizations working together to identify problems and develop solutions will lead to better use of limited resources and generation of new resources through new partnerships. CDSRB implements these activities by directing, managing, and monitoring the state-mandated Ken Maddy California Cancer Registry (CCR), California’s Comprehensive Cancer Control Program (CCCP), the Richard Paul Hemann California Parkinson’s Disease Registry (CPDR), the California Behavioral Risk Factor Surveillance System (CBRFSS), and the California Neurodegenerative Disease Registry (CNDR).

Announcements

Amyotrophic Lateral Sclerosis (ALS): September 30, 2024
To view the listening sessions please click on the links below: CNDR ALS Virtual Listening Session, Morning (MP4 - 109,403 KB) CNDR ALS Virtual Listening Session, Afternoon (MP4 - 104,111 KB) If you have any additional questions about the CNDR, please send your inquiries to CDSRBhelp@cdph.ca.gov email and we will be happy to respond.
Multiple Sclerosis and Alzheimer's Disease: January 17-18, 2023
To view the listening sessions please click on the links below: CNDR - Data Providers Virtual Listening Session, January 17, 2023 (MP4 - 112,247 KB) CNDR - Data Users Virtual Listening Session, January 18, 2023 (MP4 - 98,292 KB) If you have any additional questions about the CNDR, please send your inquiries to CDSRBhelp@cdph.ca.gov email and we will be happy to respond.

Legislation Updates
On October 13, 2023, Governor Newsom signed Senate Bill (SB) 344 into law (SB 344 Chaptered), authored by the California Legislature. This legislation makes amendments to the Health and Safety Code § 103885 and will go into effect on January 1, 2024.
Assembly Bill (AB) 424, was signed into law by Governor Gavin Newsom on October 8, 2023. AB 424 amends Health and Safety Code (HSC) 103871. One of the changes is that HSC 103871 section (b) was amended by adding the following words, “…include, but not be limited to, amyotrophic lateral sclerosis also known as Lou Gehrig's disease.” Click the link to access the Chaptered version of AB 424.

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Data Now Available!

Cancer

Annual Statistical Tables by Site, 1988-2017 (3/2020)
Cancer Fact Sheets

Parkinson’s and Neurodegenerative Disease Fact Sheets

Geographic Information System (GIS)

GIS Maps and Data

Advanced Stage Breast Cancer among Women 40 Years and Older, by Medical Service Study Areas, California Counties (2010-2014)

Map User Guide (PDF 2.21 MB)

Behavior Risk Factor Surveillance System Snapshot

Data Standards and Reporting

California State Assembly Bill (AB) 2325

Reporting by Physicians

Patient Notification

Free Brochures & Poster Now Available!

Centers for Medicare & Medicaid Services Promoting Interoperability Program


Patient Information Data for the Public Patient Record Request Form (PDF 89.5KB) Patient Record Request Check List (PDF 91.5 KB)	Resources American Cancer Society (ACS) Centers for Disease Control (CDC) National Cancer Institute (NCI) National Cancer Institute's Surveillance, Epidemiology, and End Results (SEER)	Webinars BRFSS Survey and Data Overview Presented by Vanessa Miguelino-Keasling, MPH. California Department of Public Health, Chronic Disease Surveillance and Research Branch. (PowerPoint) Advanced Stage Colorectal Cancer in California Communities Presented by Jennifer Rico, MA California Cancer Registry, California Department of Public Health (PowerPoint)