Chronic Disease Surveillance and Research Branch

group of people, doctor, cancer cells and bar graph

The Chronic Disease Surveillance and Research Branch (CDSRB) is committed to serving the public by collecting statewide data about cancer, Parkinson's disease, and chronic disease risk factors; making chronic disease surveillance data available to public health practitioners and qualified researchers; conducting chronic disease surveillance; and communicating surveillance results to the public. In addition, the Branch provides leadership for, and coordination of, California's statewide comprehensive cancer control efforts based on the concept that people and organizations working together to identify problems and develop solutions will lead to better use of limited resources and generation of new resources through new partnerships. CDSRB implements these activities by directing, managing, and monitoring the state-mandated Ken Maddy California Cancer Registry (CCR), California’s Comprehensive Cancer Control Program (CCCP), the Richard Paul Hemann California Parkinson’s Disease Registry (CPDR), the California Behavioral Risk Factor Surveillance System (CBRFSS), and the California Neurodegenerative Disease Registry (CNDR).

Announcements

Mark Your Calendar and Register Today! Wednesday September 30, 2024 Listening Session #1 at 10:00 a.m. – 11:00 a.m. Listening Session #2 at 3:00 p.m. – 4:00 p.m. ATTENTION: Neurodegenerative Stakeholders The California Neurodegenerative Disease Registry (CNDR) is convening two separate, same day, virtual listening sessions (morning and afternoon) to share with data providers, data users, and the public updates about the CNDR. The updates will include changes to Health and Safety Code 103871, the proposed date to collect Amyotrophic Lateral Sclerosis (ALS) disease information, and the proposed ALS disease case definition CNDR would like to use to determine its incidence and prevalence in California. Please register to join us on Monday, September 30, 2024, at 10:00 a.m. -11:00 a.m. or at 3:00 p.m. – 4:00 p.m. If you have questions or comments about the listening session, please email us at CDSRBhelp@cdph.ca.gov. Please Note: If you are not the correct contact for neurodegenerative disease reporting within your facility, data use, or a subject matter expert on using ICD-CM codes to diagnose or treat ALS, please forward this save the date to the correct person or email us their contact information at CDSRBhelp@cdph.ca.gov and we would be happy to invite them to the listening session. Amyotrophic Lateral Sclerosis (ALS) Virtual Listening Session September 30, 2024 10:00 a.m. - 11:00 a.m. or 3:00 p.m. – 4:00 p.m. For more information email us at CDSRBhelp@cdph.ca.gov

Announcements

CNDR Virtual Listening Session Header

Mark Your Calendar and Register Today!

Wednesday September 30, 2024

Listening Session #1 at 10:00 a.m. – 11:00 a.m.

Listening Session #2 at 3:00 p.m. – 4:00 p.m.

ATTENTION: Neurodegenerative Stakeholders

The California Neurodegenerative Disease Registry (CNDR) is convening two separate, same day, virtual listening sessions (morning and afternoon) to share with data providers, data users, and the public updates about the CNDR. The updates will include changes to Health and Safety Code 103871, the proposed date to collect Amyotrophic Lateral Sclerosis (ALS) disease information, and the proposed ALS disease case definition CNDR would like to use to determine its incidence and prevalence in California.

Please register to join us on Monday, September 30, 2024, at 10:00 a.m. -11:00 a.m. or at 3:00 p.m. – 4:00 p.m.

If you have questions or comments about the listening session, please email us at CDSRBhelp@cdph.ca.gov.

Please Note: If you are not the correct contact for neurodegenerative disease reporting within your facility, data use, or a subject matter expert on using ICD-CM codes to diagnose or treat ALS, please forward this save the date to the correct person or email us their contact information at CDSRBhelp@cdph.ca.gov and we would be happy to invite them to the listening session.

Amyotrophic Lateral Sclerosis (ALS)

Virtual Listening Session

September 30, 2024

10:00 a.m. - 11:00 a.m.

3:00 p.m. – 4:00 p.m.

For more information email us at CDSRBhelp@cdph.ca.gov

Legislation Updates
On October 13, 2023, Governor Newsom signed Senate Bill (SB) 344 into law (SB 344 Chaptered), authored by the California Legislature. This legislation makes amendments to the Health and Safety Code § 103885 and will go into effect on January 1, 2024.
Assembly Bill (AB) 424, was signed into law by Governor Gavin Newsom on October 8, 2023. AB 424 amends Health and Safety Code (HSC) 103871. One of the changes is that HSC 103871 section (b) was amended by adding the following words, “…include, but not be limited to, amyotrophic lateral sclerosis also known as Lou Gehrig's disease.” Click the link to access the Chaptered version of AB 424.

CNDR Virtual Listening Sessions

To view the listening sessions please click on the links below:

CNDR - Data Providers Virtual Listening Session, January 17, 2023 (MP4 - 112,247 KB)
CNDR - Data Users Virtual Listening Session, January 18, 2023 (MP4 - 98,292 KB)

If you have comments pertain to the virtual listening sessions that occurred on January 17–18, 2023, please send your comments and/or questions to the CDSRBhelp@cdph.ca.gov. Responses will be added to our Frequently Asked Questions.

If you have any additional questions about the CNDR, please send your inquiries to CDSRBhelp@cdph.ca.gov email and we will be happy to respond.

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Data Now Available!

Cancer

Annual Statistical Tables by Site, 1988-2017 (3/2020)
Cancer Fact Sheets

Parkinson’s and Neurodegenerative Disease Fact Sheets

Geographic Information System (GIS)

GIS Maps and Data

Advanced Stage Breast Cancer among Women 40 Years and Older, by Medical Service Study Areas, California Counties (2010-2014)

Map User Guide (PDF 2.21 MB)

Behavior Risk Factor Surveillance System Snapshot

Data Standards and Reporting

California State Assembly Bill (AB) 2325

Reporting by Physicians

Patient Notification

Free Brochures & Poster Now Available!

Centers for Medicare & Medicaid Services Promoting Interoperability Program


Patient Information Data for the Public Patient Record Request Form (PDF 89.5KB) Patient Record Request Check List (PDF 91.5 KB)	Resources American Cancer Society (ACS) Centers for Disease Control (CDC) National Cancer Institute (NCI) National Cancer Institute's Surveillance, Epidemiology, and End Results (SEER)	Webinars BRFSS Survey and Data Overview Presented by Vanessa Miguelino-Keasling, MPH. California Department of Public Health, Chronic Disease Surveillance and Research Branch. (PowerPoint) Advanced Stage Colorectal Cancer in California Communities Presented by Jennifer Rico, MA California Cancer Registry, California Department of Public Health (PowerPoint)