Title V is a federal funding source designed to provide family-centered, community-based health care infrastructure and services to maternal and child populations in all U.S. states and territories. Services for CYSHCN have been an integral part of the Title V mission since its inception in 1935. In fact, at least 30% of Title V funding must be used to support CYSHCN.
Title V CYSHCN programs started with a focus on direct services for children with physical disabilities, due in large part to the polio epidemic during the 20th century. In 1981, Title V and other programs were combined into a block grant allocated to the states. As types and prevalence of special health care needs have changed over time, services have evolved and vary greatly from state to state.3