Parent and Caregiver Handbook for Sickle Cell
Appendix: Comprehensive sickle cell disease care plans
- Birth ā 6 years
- 6 years ā Adult
Note: These are sample care plans recommended by UCSF Benioff Children's Hospital Oakland Sickle Cell Center. If you have any questions, ask your child's doctor or sickle cell care center.
Comprehensive Sickle Cell Disease Care Plan: Birth - 6 Years
|
General Physical Exam |
cell empty
|
Under 6 months
|
Once a month |
| 6 monthsā1 year |
Every 2 months |
| 1ā6 years |
Every 3ā4 months |
|
immunizations & TB Tests |
See shots schedule in Appendix F |
|
Comprehensive Social Worker evaluation |
cell empty
|
| Interview |
Every 2 years |
| Home visit |
Once a year
|
| School Assessment |
One a year |
|
Genetic Counseling Services |
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|
| Family Studies |
First visit |
| Counseling and Education |
1ā3 times a year |
|
Hematology (red blood cell) evaluation |
Every 3 months to age 2; then every 6 months |
|
Liver Studies |
Once a year after age 12 months |
|
Gallbladder evaluation |
Every year after age 12 months |
|
Renal (kidney) tests |
Once a year after age 12 months |
|
Brain (TCD Screening) |
Annually beginning at age 2 (more often if needed) |
|
Cardiac (Heart) tests |
Every 2 years |
|
Pulmonary (Lung) tests |
Every 6 months or when needed after age 12 months |
|
Dental Evaluation |
Once a year starting at age 3 |
|
Psychological/Family Therapy Consultation |
Once a year |
|
Physical Therapy Assessment |
When needed |
|
Developmental Screen |
Once a year or when needed |
Comprehensive Sickle Cell Disease Care Plan: 6 Years - Adult
|
General Physical Exam |
cell empty
|
| 6ā8 years |
Every 3ā4 months |
| 9ā18 years |
Every 4ā6 months |
| Over 18 years |
Every 6ā12 months |
|
Diphtheria and Tetanus Booster |
Every 10 years after initial series |
|
Other Immunizations |
As advised by sickle cell doctor |
|
Flu Shot |
Once a year |
|
TB Tests |
Once a year |
|
Comprehensive Social Worker Evaluation |
cell empty
|
| Interview, Evaluation, & School Assessment |
Once a year |
|
Genetic Counseling Services |
cell empty
|
| Family Studies |
First visit |
| Sickle Cell Counseling |
Once a year or as needed |
|
Hematology Evaluation |
Every 4 months to twice a year |
|
Liver and Gallbladder Evaluation |
As advised by sickle cell doctor |
|
Renal (Kidney) tests |
At least once a year |
|
Echocardiogram (Heart) test |
By 10 years with follow-up as indicated |
Ophthalmology (Eye) tests
|
Once a year (after age 10 years) |
|
Pulmonary (Lung) Function Testing |
By 10 years with follow-up as indicated |
Dental Evaluation
|
Once a year |
|
Neurological Evaluation |
Once a year |
|
Psychological/Family Therapy Consultation |
Once a year |
Physical Therapy Assessment
|
As necessary |
|
Formal Nutrition Assessment |
Every 2 years or as needed |
|
Sickle Cell Patient Education |
1ā3 times a year or as needed |
|
Transition Evaluation |
Age 12 years then yearly |
|
School Performance Evaluation |
Once a year |
These samples are provided courtesy of the University of San Francisco, Benioff Children's Hospital Oakland Sickle Cell Center.āāāāāāāā