Skip Navigation LinksSCHandbook_CarePlans

genetic disease screening program

Parent and Caregiver Handbook for Sickle Cell

Appendix: Comprehensive sickle cell disease care plans

  • Birth – 6 years
  • 6 years – Adult

Note: These are sample care plans recommended by UCSF Benioff Children's Hospital Oakland Sickle Cell Center. If you have any questions, ask your child's doctor or sickle cell care center.

Comprehensive Sickle Cell Disease Care Plan: Birth - 6 Years

Evaluation​​
Interval
General Physical Exam
cell empty
Under 6 months
Once a month
6 months–1 year Every 2 months
1–6 years Every 3–4 months
immunizations & TB Tests See shots schedule in Appendix F
Comprehensive Social Worker evaluation
cell empty
Interview Every 2 years
Home visit Once a year
School Assessment One a year
Genetic Counseling Services
cell empty
Family Studies First visit
Counseling and Education 1–3 times a year
Hematology (red blood cell) evaluation Every 3 months to age 2; then every 6 months
Liver Studies Once a year after age 12 months
Gallbladder evaluation Every year after age 12 months
Renal (kidney) tests Once a year after age 12 months
Brain (TCD Screening) Annually beginning at age 2 (more often if needed)
Cardiac (Heart) tests Every 2 years
Pulmonary (Lung) tests Every 6 months or when needed after age 12 months
Dental Evaluation Once a year starting at age 3
Psychological/Family Therapy Consultation Once a year
Physical Therapy Assessment When needed
Developmental Screen Once a year or when needed

Comprehensive Sickle Cell Disease Care Plan: 6 Years - Adult

Evaluation​​ Interval
General Physical Exam
cell empty
6–8 years Every 3–4 months
9–18 years Every 4–6 months
Over 18 years Every 6–12 months
Diphtheria and Tetanus Booster Every 10 years after initial series
Other Immunizations As advised by sickle cell doctor
Flu Shot Once a year
TB Tests Once a year
Comprehensive Social Worker Evaluation
cell empty
Interview, Evaluation, & School Assessment Once a year
Genetic Counseling Services
cell empty
Family Studies First visit
Sickle Cell Counseling Once a year or as needed
Hematology Evaluation Every 4 months to twice a year
Liver and Gallbladder Evaluation As advised by sickle cell doctor
Renal (Kidney) tests   At least once a year
Echocardiogram (Heart) test By 10 years with follow-up as indicated
Ophthalmology (Eye) tests
Once a year (after age 10 years)
Pulmonary (Lung) Function Testing By 10 years with follow-up as indicated
Dental Evaluation
Once a year
Neurological Evaluation Once a year
Psychological/Family Therapy Consultation Once a year
Physical Therapy Assessment
As necessary
Formal Nutrition Assessment Every 2 years or as needed
Sickle Cell Patient Education 1–3 times a year or as needed
Transition Evaluation Age 12 years then yearly
School Performance Evaluation Once a year

These samples are provided courtesy of the University of San Francisco, Benioff Children's Hospital Oakland Sickle Cell Center.​​​​​​​​

Page Last Updated :