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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (September 30, 2019):  The California Parkinson’s Disease Registry (CPDR) is now processing data received from one full year of mandated reporting (July 1, 2018 through June 30, 2019). Reporting entities submitted 169,153 records to CPDR by the third data submission deadline of September 27, 2019. It is important to note that the number of records reported to the registry does not represent the number of individuals with Parkinson’s disease in California. The next step in processing the data includes the de-duplication of case records and other quality control measures. CPDR is continuing to work with Reporting Providers and Reporting Entities to facilitate continued and expanded data submission. The next deadline for data submission is December 27, 2019, and will include patient encounters through September 30, 2019. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods, along with case reports for the current reporting period.

If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact us at CPDRhelp@cdph.ca.gov or (916) 731-2500.

 

Important Dates

December 27, 2019:  FOURTH CASE SUBMISSION DEADLINE for all reportable cases through September 30, 2019. See the CPDR Implementation Guide Version 3.0 for more information, including a complete list of case submission deadlines. 

September 27, 2019:  THIRD CASE SUBMISSION DEADLINE for all reportable cases through June 30, 2019. See the CPDR Implementation Guide Version 3.0 for more information, including a complete list of case submission deadlines.  

March 29, 2019:  First case submission deadline.  See CPDR Implementation Guide Version 3.0 for a complete list of case submission deadlines.  

December 2018:  WEBINAR - Reporting Data to the California Parkinson's Disease Registry.  Click here to access the webinar. PASSWORD: CPDRdec2018.

August 7, 2018:  A new update to the IMPLEMENTATION GUIDE is now available (Version 3.0, August 2018).

July 1, 2018:  Mandatory statewide reporting of Parkinson's disease begins.

June 25, 2018:  CPDR Implementation Guide Version 2.0 released. Please Note: The Implementation Guide has New Changes to the Specifications  for Reporting. To download a copy see link below under Implementation Resources.

June 8, 2018:  REGISTRATION PORTAL OPENS. Establish intent to report to CPDR by registering on the CDPH Health Information Exchange (HIE) Gateway.

May 29, 2018:  FREE Informational meeting in NORTHERN CALIFORNIA

May 23, 2018:  FREE Informational meeting in SOUTHERN CALIFORNIA

April, 2018:  CPDR Implementation Guide released (see below under Implementation Resources).  This guide provides the necessary specifications for reporting Parkinson's Disease data to CPDR, and outlines who is required to report, the timing of reporting, and the methods for transmitting data.

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