California Parkinson's Disease Registry
California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018. The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time. California's large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.
March 29, 2019: First case submission deadline. See CPDR Implementation Guide Version 3.0 for a complete list of case submission deadlines.
December 2018: WEBINAR - Reporting Data to the California Parkinson's Disease Registry. Click here to access the webinar. PASSWORD: CPDRdec2018.
August 7, 2018: A new update to the IMPLEMENTATION GUIDE is now available (Version 3.0, August 2018).
July 1, 2018: Mandatory statewide reporting of Parkinson's disease begins.
June 25, 2018: CPDR Implementation Guide Version 2.0 released. Please Note: The Implementation Guide has New Changes to the Specifications for Reporting. To download a copy see link below under Implementation Resources.
June 8, 2018:
REGISTRATION PORTAL OPENS. Establish intent to report to CPDR by registering on the CDPH Health Information Exchange (HIE) Gateway.
May 29, 2018: FREE Informational meeting in NORTHERN CALIFORNIA
May 23, 2018: FREE Informational meeting in SOUTHERN CALIFORNIA
April, 2018: CPDR Implementation Guide released (see below under Implementation Resources). This guide provides the necessary specifications for reporting Parkinson's Disease data to CPDR, and outlines who is required to report, the timing of reporting, and the methods for transmitting data.