California Parkinson's Disease Registry
California Health and Safety Code (HSC) 103860-103870 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to California Department of Public Health beginning July 1, 2018. The California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time. California's large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.
April, 2018: CPDR Implementation Guide released (see below under Implementation Resources). This guide provides the necessary specifications for reporting Parkinson's Disease data to CPDR, and outlines who is required to report, the timing of reporting, and the methods for transmitting data.
May 23, 2018: FREE Informational meeting in SOUTHERN CALIFORNIA
May 29, 2018: FREE Informational meeting in NORTHERN CALIFORNIA
June 8, 2018: REGISTRATION PORTAL OPENS. Establish intent to report to CPDR by registering on the CDPH Health Information Exchange (HIE) Gateway.
July 1, 2018: Mandatory statewide reporting of Parkinson's disease begins.