Skip Navigation LinksCalifornia-Parkinson's-Disease-Registry

cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

Parkinson_Header

California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (10/01/2018):  To date, 432 Parkinson's disease cases have been submitted to CPDR. In addition, more than 80 individuals have registered to submit data to the registry. This figure does not include larger medical groups and hospitals who will be reporting on behalf of their physicians. Since the first deadline for data submission is March 29, 2019, we anticipate the majority of cases from the first six months of mandated reporting will be submitted after January of 2019.

If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact us at CPDRhelp@cdph.ca.gov or (916) 731-2500.

 

Important Dates

March 29, 2019:  First case submission deadline.  See CPDR Implementation Guide Version 3.0 for a complete list of case submission deadlines.  

August 7, 2018:  A new update to the IMPLEMENTATION GUIDE is now available (Version 3.0, August 2018).

July 1, 2018:  Mandatory statewide reporting of Parkinson's disease begins.

June 25, 2018:  CPDR Implementation Guide Version 2.0 released. Please Note: The Implementation Guide has New Changes to the Specifications  for Reporting. To download a copy see link below under Implementation Resources.

June 8, 2018:  REGISTRATION PORTAL OPENS. Establish intent to report to CPDR by registering on the CDPH Health Information Exchange (HIE) Gateway.

May 29, 2018:  FREE Informational meeting in NORTHERN CALIFORNIA

May 23, 2018:  FREE Informational meeting in SOUTHERN CALIFORNIA

April, 2018:  CPDR Implementation Guide released (see below under Implementation Resources).  This guide provides the necessary specifications for reporting Parkinson's Disease data to CPDR, and outlines who is required to report, the timing of reporting, and the methods for transmitting data.

 IMPLEMENTATION RESOURCES
California Parkinson's Disease Registry Reporting Implementation Guide (pdf) (Version 3; updated 08/07/2018) 

New Update: Implementation Guide has changes to specifications for reporting Parkinson's disease data to CPDR.

California Parkinson's Disease Registry, Electronic Reporting of Parkinson's Disease
​​
 STAY INFORMED
Join our Listserv to receive program updates by email.
Page Last Updated :