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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103860-103870 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to CDPH beginning July 1, 2018.  The California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's Disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will greatly expand our understanding of Parkinson's disease and ultimately improve the lives of those affected.

 

Important Dates

 

April 1, 2018:  CPDR Implementation Guide to be released.  This guide will provide the necessary specifications for reporting Parkinson's Disease data to CPDR and will outline who is required to report, the timing of reporting, and the methods for transmitting data.

April 15, 2018:  Registration for reporting opens (information coming soon)

May, 2018:  Public informational meeting in Northern California

May, 2018:  Public informational meeting in Southern California

July 1, 2018:  Mandatory statewide reporting of Parkinson's disease begins.

 

 IMPLEMENTATION RESOURCES
California Parkinson's Disease Registry Reporting Implementation Guide (coming soon)
California Senate Bill 97
At-A-Glance (coming soon)

        
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 STAY INFORMED
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