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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (June, 2019):  The California Parkinson’s Disease Registry (CPDR) has begun processing data received from the first two quarters of mandated reporting (July 1 through December 31, 2018). Reporting entities submitted 80,594 records to CPDR by the first deadline of March 29, 2019. It is important to note that the number of records reported to the registry does not represent the number of individuals with Parkinson’s disease in California. The next step in processing the data will include the de-duplication of case records and other quality control measures. CPDR is continuing to work with Reporting Providers and Reporting Entities to facilitate continued and expanded data submission. The next deadline for data submission is June 29, 2019, and will include patient encounters through March 31, 2019. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from 2018, along with case reports for the current reporting period.

If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact us at CPDRhelp@cdph.ca.gov or (916) 731-2500.

 

Important Dates

June 29, 2019:  SECOND CASE SUMBISSION DEADLINE for all reportable cases through March 31, 2019. See the CPDR Implementation Guide Version 3.0 for more information, including a complete list of case submission deadlines.  

March 29, 2019:  First case submission deadline.  See CPDR Implementation Guide Version 3.0 for a complete list of case submission deadlines.  

December 2018:  WEBINAR - Reporting Data to the California Parkinson's Disease Registry.  Click here to access the webinar. PASSWORD: CPDRdec2018.

August 7, 2018:  A new update to the IMPLEMENTATION GUIDE is now available (Version 3.0, August 2018).

July 1, 2018:  Mandatory statewide reporting of Parkinson's disease begins.

June 25, 2018:  CPDR Implementation Guide Version 2.0 released. Please Note: The Implementation Guide has New Changes to the Specifications  for Reporting. To download a copy see link below under Implementation Resources.

June 8, 2018:  REGISTRATION PORTAL OPENS. Establish intent to report to CPDR by registering on the CDPH Health Information Exchange (HIE) Gateway.

May 29, 2018:  FREE Informational meeting in NORTHERN CALIFORNIA

May 23, 2018:  FREE Informational meeting in SOUTHERN CALIFORNIA

April, 2018:  CPDR Implementation Guide released (see below under Implementation Resources).  This guide provides the necessary specifications for reporting Parkinson's Disease data to CPDR, and outlines who is required to report, the timing of reporting, and the methods for transmitting data.

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