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Parent and Caregiver Handbook for Sickle Cell


Information and Links

Sample Forms, Letters, or Plans

California Department of Public Health programs

Filing a Complaint

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, published by The National Academies, states that “persistent discrimination in the health care system and racism in society at large” have contributed to sickle cell disease receiving relatively little attention and few resources from the scientific, clinical, and public health communities.

Speak Up™ Against Discrimination is a patient safety campaign from The Joint Commission. This campaign tells you how to stand up for your rights and file a complaint when experiencing discrimination in health care.

  • You can file a complaint with the state if your rights were denied at a health care facility: Cal Health Find Database.

Additional Resources

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