• California Children Services (CCS)-approved Sickle Cell Disease Centers
  
• California Clinical Network and Community Based Organizations
  
• Cayenne Wellness
• Networking CA for Sickle Cell Care
• Pacific Regional Sickle Cell Collaborative
• Sickle Cell Anemia Awareness San Francisco
  
• Sickle Cell Data Collection Program
  
• Sickle Cell Disease Foundation
• Sickle Cell Trait Awareness Campaign
  

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, published by The National Academies, states that "persistent discrimination in the health care system and racism in society at large" have contributed to sickle cell disease receiving relatively little attention and few resources from the scientific, clinical, and public health communities.

Speak Up™ Against Discrimination is a patient safety campaign from The Joint Commission. This campaign tells you how to stand up for your rights and file a complaint when experiencing discrimination in health care.

• You can file a complaint with the state if your rights were denied at a health care facility: Cal Health Find Database.

• You can file a complaint with the federal government if your rights were denied: U.S. HHS Complaint Portal Assistant.
  

• You can file a complaint about your health insurance plan if your rights were denied: California Department of Managed Health Care.​​​​​​​​​​​​​​​​​​​​​

• About Sickle Cell Disease (CDC)
• National Human Resource Genome Institute
• Diagram of Sickle Cell Inheritance Tool (Punnett Squares)
  

• African Research and Innovative Initiative for Sickle Cell Education
  

• Centers for Disease Control and Prevention (CDC)
  
• National Heart, Lung, and Blood Institute (NHLBI)  
  
• U.S. Department of Health and Human Services (HHS) 
• U.S. Food and Drug Administration (FDA)
  
• National Human Genome Research Institute (NIH)
  

• American Society of Hematology
• Be the Match
• Change for Sickle Cell Disease (Bluebird Bio Inc.)
  
• Family Voices
  
• National Organization for Rare Disorders (NORD)
• One Sickle Cell Disease Voice
• Sick Cells 
  
• Sickle Cell 101 
• Sickle Cell Connect (Be the Match)
  
• Sickle Cell Disease Coalition (American Society of Hematology)
• Sickle Cell Disease Association of America 
• Sickle Cell Speaks (Global Blood Therapeutics)
  

• r-FLACC (revised FLACC) Pain Rating Scale for Children (PDF) - a tool to help a family describe and assess a child's pain 
  
• Sickle Cell Disease and Pain - Nationwide Children's
  

• SCD Cares Consortium by Sickle Cell Disease Association of America Inc.
• California Institute for Regenerative Medicine 
• University of California Health Clinical Trials 
  
• Clinical trial finder 
• Clinicaltrials.gov
  

• Sickle Cell Disease (CDC)
  
• Sickle Cell Disease Fact Sheet (English)
  
• Sickle Cell Disease Fact Sheet (Spanish)
  
• Sickle Cell 101
• Sickle Cell Trait Resources (CDC)
  
• Sickle Cell Has Many Faces videos. Watch people of diverse backgrounds with SCD share that SCD can affect anyone, no matter what you look like or where your family comes from:
• A Message for Healthcare Providers: Sickle Cell Has Many Faces (YouTube)
• Sickle Cell Has Many Faces (YouTube, for a general audience)
• Steps to Better Health Toolkit
  
• Valle J, Baker JR, Madrigal D, Ferrerosa J, Paulukonis S. Sickle cell disease among Latinx in California.  PLoS One. 2022 Oct 27;17(10):e0276653. doi: 10.1371/journal.pone.0276653.
• YouTube Video (Spanish): Jhaqueline Valle, MPH, on Sickle Cell Disease in the Latinx Community. Share this resource with Spanish-speakers in your community.

• Doctor Letter to Schools about Physical Education (Santa Barbara Unified School District, PDF)
  
• School Emergency Care Plan (PDF)
  
• School Individual Education Plan or “IEP” (PDF, 1.3 MB​)
  
• School Individualized Healthcare Plan (PDF)
  
• Sickle Cell Disease and an “IEP” and a “504-Plan” in Public Education
  
• Sickle Cell Pain Action Plan (Ohio State University, PDF, 1 MB)
  
• Sickle Cell Pain Action Plan (Children's of Alabama, PDF)
  
• Authorization for Medical Treatment Form (PDF)
  
• Authorization for Release of information Form (PDF)
  
• Comprehensive Sickle Cell Disease Care Plans: Birth to 6 Years and 6 Years to Adult 
• Doctor Physical Education Letter to Schools: Template
  
• Doctor Travel Letter: Template​
  

• Got Transition 
  
• Parenting Your Teenager
  
• Transitioning Your Medical Care: Sickle Cell Disease - Nemours Teen Health
• Videos and Podcasts on Sickle Cell Disease - Stepping Up: A 2-part video series about transition - Centers for Disease Control and Prevention (CDC). Kevin and Calvanay, two young adults with SCD, share their experience transitioning to adult care and how they've overcome challenges related to transitioning with SCD. Spanish transcripts of the videos are available online.