California Neurodegenerative Disease Registry
How to Report Your Data
Licensed independent practitioners (LIPs) holding the following credentials, who diagnose or treat neurodegenerative disease patients, are required to report. Doctor of Medicine (MD), Doctor of Osteopathy (DO), Physician's Assistant (PA), and Nurse Practitioner (NP).
Other LIPs, including advanced practice registered nurses, home care nurses, physical/occupational/speech therapists, chiropractors, podiatrists, acupuncturists, and optometrists are not required to report.
If LIPs work in a group practice, have a formalized relationship within the practice, or are part of a hospital or facility medical staff, the encounter reporting can be performed by the hospital or facility. A single report may constitute encounter data from multiple LIPs.
Please register your organization's intent to report before the July 1, 2023, deadline! Starting on July 1, 2023, Health and Safety Code Section 103871 requires hospital, facility, physician and surgeon, and other health care providers to report to California Department of Public Health (CDPH) each case of a neurodegenerative disease that was designated as reportable by CDPH. However, in light of needed initial onboarding to the reporting systems and corresponding logistics, CDPH will be flexible with the reporting due dates for the first reporting period and will assist providers with the process.
Per requested registration information, please determine whether you can report automatically with your EHR. If your facility cannot interface directly, you can use the Direct Data Entry Web Portal.
Steps to Start Reporting:
Step 1: Register to Report
First-time users will need to REGISTER by completing the CNDR Electronic and Manual Reporting Registration Form (pdf) and submit it to CDSRBHelp@cdph.ca.gov. If you will be reporting via the Web Portal (Manual Reporting), please also complete the CalREDIE Neurodegenerative Disease Reporter Account Authorization Form (pdf) and submit it to CDSRBHelp@cdph.ca.gov.
Facilities are required to register for reporting on behalf of represented neurologist within an organization. Registration information includes Lead physician contact, administrative/business management contact, technical interface contact, EHR vendor information for the purpose of providing a certificate for submission to the web service where applicable.
If you are currently reporting Parkinson's data and your intention is to add reporting of MS data, please email us at CDSRBHelp@cdph.ca.gov to let us know.
Step 2: Onboarding – If your facility has registered what are the next steps.
Pick a Transmission Method:
Submit Data via Direct Data Entry Web Portal:
Electronic Interface Options: If your facility will be reporting utilizing an electronic interface between your EHR system and CNDR, the next steps are as follows:
- Contact CDSRBHelp@cdph.ca.gov to discuss options for secure connection methods and transmission format standards
- Visit the Self-Testing Portal:
- Here you can download a sample HL7 Message that your team can use to format your message.
- Once your message passes validation from the portal, a reportable case trigger mechanism from your EHR needs to be identified and established.
- Your facility has passed validation, and a reportable case identification mechanism has been identified.
- The next step is to begin acceptance testing by sending test messages to the state.
- Request credentials for your message submission method (SOAP, SFTP, FHIR) by sending an email to CDSRBhelp@cdph.ca.gov.
- Once your message submissions have been validated your facility will be moved to production for ongoing submissions to the central registry.
- If you are currently submitting Parkinson's data through the electronic interface and you will be reporting your MS data via the same method, please email us at CDSRBHelp@cdph.ca.gov to let us know.
All LIPs and EHR vendors should reference the CNDR Electronic Reporting Standards Implementation Guide (pdf) and review the reporting requirements to ensure the required data is being transmitted.