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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (March 24, 2020):  Due to impacts from COVID-19, the California Parkinson's Disease Registry (CPDR) is extending the upcoming deadline for data submission. The next deadline for data submission is June 29, 2020, and will include all reportable patient encounters through March 31, 2020. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods, along with case reports for the current reporting period. Mandated reporting will continue through January 1, 2021.

 

Data Submission Deadlines for 2020:

​Date of Patient Encounter ​Submission Deadline*
October 1 - December 31, 2019 June 29, 2020
​January 1 - March 31, 2020 ​June 29, 2020
​April 1 - June 30, 2020 ​September 27, 2020
​July 1 - September 30, 2020 ​December 27, 2020
​October 1 - December 31, 2020 ​March 30, 2021

*Note:  CPDR will continue to accept case reports from previous reporting periods.

New:

The California Parkinson's Disease Registry (CPDR) Guide to Reporting is available for download.  This document is an update to the CPDR Implementation Guide (version 3, 2018). The updated Guide to Reporting includes data submission deadlines for 2020. In addition, Section 4.4 has been updated to help clarify the onboarding process based on feedback CPDR received over the past year.

The California Parkinson's Disease Registry (CPDR) Guide to Reporting (January 2020). (PDF)

 

 

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