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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (October 28, 2019):  Earlier this month, Governor Gavin Newsom signed California State Assembly Bill 715, extending the sunset date for the Richard Paul Hemann Parkinson's Disease Program from January 1, 2020 to January 1, 2021.

The California Parkinson’s Disease Registry (CPDR) is now processing data received from one full year of mandated reporting (July 1, 2018 through June 30, 2019). Reporting entities submitted 169,153 records to CPDR by the third data submission deadline of September 27, 2019. It is important to note that the number of records reported to the registry does not represent the number of individuals with Parkinson’s disease in California. The next step in processing the data includes the de-duplication of case records and other quality control measures. CPDR is continuing to work with Reporting Providers and Reporting Entities to facilitate continued and expanded data submission. The next deadline for data submission is December 27, 2019, and will include patient encounters through September 30, 2019. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods, along with case reports for the current reporting period.

If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact us at CPDRhelp@cdph.ca.gov or (916) 731-2500.

 

Data Submission Deadlines:

​Date of Patient Encounter​Submission Deadline*
​July 1 - September 30, 2019​December 27, 2019
​October 1 - December 31, 2019​March 30, 2020
​January 1 - March 31, 2020​June 29, 2020
​April 1 - June 30, 2020​September 27, 2020
​July 1 - September 30, 2020​December 27, 2020
​October 1 - December 31, 2020​March 30, 2021

*Note:  CPDR will continue to accept case reports from previous reporting periods.

 

NEW 

Skip to main contentCPDR Fact Sheet:  Accomplishments & Updates, September 2019 (pdf)

 

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