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State of California—Health and Human Services Agency
California Department of Public Health

March 24, 2022

Family Members and Caregivers of Children and Youth with Special Health Care Needs and Disabilities

Tips and Resources for Family Members and Caregivers of Children and Youth with Special Health Care Needs and Disabilities

​​ This Guidance is no longer in effect and is for historical purposes only.​​​​

​This document provides suggestions and resources for family members and caregivers of children and youth with special health care needs and disabilities. We understand that families and caregivers are facing unique challenges and stress during the COVID-19 pandemic. See the end of this document for a list of resources to support families and caregivers. These resources were last updated on December 9, 2021.The best way to protect your child, yourself and your community is to get vaccinated as soon as you are eligible.

COVID-19 in Children

  • Children can get sick from COVID-19 and spread the virus to others. Many children have no or mild symptoms, but some can become severely ill and even die.

  • According to the Centers for Disease Control and Prevention (CDC), current evidence suggests that children with certain underlying medical conditions and infants (age <1 year) might be at increased risk for severe illness from COVID-19. Most children who have developed severe illness from COVID-19 have had underlying medical conditions.

  • Children with medical complexity, with genetic, neurologic, metabolic conditions, or with congenital heart disease might be at increased risk for severe illness from COVID-19.

  • Similar to adults, children with obesity, diabetes, asthma or chronic lung disease, sickle cell disease, or immunosuppression might also be at increased risk for severe illness from COVID-19.

  • Talk with your child's doctor if you have questions about your child's risk of developing severe illness.  

Face Masks

Medical Visits

  • It is important that your child continues to receive the healthcare they need.

  • Doctor's offices and clinics have protocols in place to keep your child safe during in-person visits.

  • You can also check with your doctor, including all specialists and other providers (e.g., physical or occupational therapy) to see what needs may be met with a phone or video appointment.

  • The American Academy of Pediatrics recommends keeping routine well-child care and immunization appointments for all children and adolescents. 

  • If you do need to take your child to a medical appointment, call ahead. Many offices and clinics have new guidelines for in-person care and they change often.

  • If your child has a medical emergency and needs to go to the hospital, call ahead to see if admitting practices or locations have changed.

Medication and Supplies 

  • You may be able to get a 90-day supply of medication at one time to cut down on unnecessary trips. Your pharmacy may also mail prescriptions or offer drive-through pick up. Ask your provider or pharmacist about options.

  • Many health insurers, including Medi-Cal, have made it easier to access prescription refills during this time. Ask your health plan or provider for details.

  • Talk to your child's doctor about getting extra supplies, including any medical equipment, technology and nutrition support.  

  • If your child relies on a special diet and/or formula, call ahead to your pharmacy or grocery store to ask when deliveries are expected.

Home Health Visits

  • Home health care, private duty nursing, and respite care may be an essential part of your family's routine. While you might not be able to postpone visits for your child or conduct them over phone or video, try to minimize the number of people who come into your home during times of high community transmission and/or if you have family members at higher risk for severe illness. 

  • Check with the company or organization that provides home health services about what precautions they are taking to prevent the spread of COVID-19, including vaccination status of staff, and how you can help keep your child and those around them safe and healthy. 

  • Depending on community transmission levels, your family's vaccination status, and your family's risk of developing severe illness, you may want to ask anyone providing care or therapy for your child to wear a well-fitted face mask and keep 6 feet of distance, when possible.

  • To prevent possible transmission of COVID-19 when a visitor is present, improve ventilation in your home by opening windows and doors, if possible. For additional information, see CDPH Guidance for Ventilation of Indoor Spaces.

  • Keep up routine good hygiene habits that your family likely already practices: wiping down high-touch surfaces and washing hands frequently. Visitors in your home should wash their hands upon arrival and before leaving.

  • If you have concerns about getting the care you need, reach out to your child's health care provider, local Family Resource Center, or local Public Health Department for help. 

Family Wellbeing and Mental Health 

  • As a caregiver or family member, consider what your contingency plan will be if you get sick. Your local Family Resource Center or care coordinator/social worker (if you have been assigned one) can provide support and suggestions to help. 

  • Prioritize your mental health. Reach out to your health care provider if you need help managing stress and anxiety. Two 24/7 helplines are provided in the resource table.

  • There are helpful tips available for managing stress for your child and your family.

  • If you are experiencing domestic or family violence or have any concerns about you or your loved ones' safety, please reach out for help.

  • The pandemic has affected many people financially. Important information on relief is available, including unemployment insurance, eviction protection, and food assistance.


  • Continue to talk with your child about what is happening. Open discussion can help reduce fear.

  • Reassure your child that they are safe, while letting them know it is okay to feel upset.

  • Limit your child's exposure to news and social media coverage of the pandemic. Children may misinterpret what they hear and become stressed or frightened by something they may not understand.

  • Maintain routines, connect with family and friends safely in-person or virtually, and build family time into the schedule.

  • There are many kid-friendly resources to help you talk to your child about COVID-19-related topics. See resource list below.

Returning to School

  • For resources and information, visit the Safe Schools Hub.

  • Discuss the best and safest school options with your family, your child's doctor and school staff, such as school nurses and special education teachers. Your child's Individualized Education Program (IEP) and 504 plans can be implemented or updated based on the educational setting.

  • Review your school's plans for keeping students and teachers safe to understand what steps will be taken to reduce the spread of COVID-19.

  • Children at higher risk for severe illness may need extra accommodations to stay safe.    

  • Changes in school routines can be stressful. Take time to communicate with your child about any changes to their daily routine.

COVID-19 Vaccine

  • The most recent information on vaccine eligibility and recommendations can be found on the CDC's Vaccination website.

  • For up-to-date information on when COVID-19 vaccines are available for specific groups of people in California, please visit the California COVID-19 Vaccine webpage.     

  • Key resources are offered in the table below. 

More resources specifically for families are available on the Center for Family Health's COVID-19 Resource Page.

Resource Contact Information

Family Resource Centers (FRC)

Parent to parent support, outreach, information and referral services to families of children with disabilities.

Local Public Health Departments

The best source for local information about COVID-19 and community resources available during this time. 

Regional Center

Regional centers provide or coordinate services and supports for individuals with developmental disabilities. 

Mental Health: Manage Stress and Anxiety
Food Needs
Support for Job Loss 
Domestic Violence and Child Abuse
  • The National Domestic Violence Hotline
    • Our advocates are available 24/7 at 1 (800) 799-SAFE (7233) in more than 200 languages. All calls are free and confidential.
    • You can also access help by clicking Chat Live Now.
  • Find a domestic violence organization near you:
  • For child abuse concerns:

Originally Published on April 15, 2021