California Parkinson’s Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson’s disease patients to report each case of Parkinson’s disease to the California Department of Public Health beginning July 1, 2018. The Richard Paul Hemann California Parkinson’s Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson’s disease. 

Surprisingly, little is known about how Parkinson’s disease is distributed among different population groups and whether the patterns of disease are changing over time. California’s large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinson’s disease to ultimately improve the lives of those affected.

​ ​​​​ ​Did you know an estimated 90,000 adults in the United States are diagnosed with Parkinson's disease each year. This represents an estimated 50 percent increase from the previously estimated rate of 60,000 diagnoses per year.  ​ April is the month to increase awareness about Parkinson's disease, emphasize early detection, and highlight resources available to those living with Parkinson's Disease and their caregivers. ​ This month also allows California Department of Public Health to highlight the California Parkinson's Disease Registry (CPDR). ​

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​Landmark Moment in Search for Parkinson’s Biomarker The Michael J. Fox Foundation announced the most significant breakthrough to date in the search for a Parkinson’s biomarker: a highly accurate biological test for Parkinson’s disease. The test is capable of objectively and reliably detecting the disease at the molecular level — even before the onset of symptom​s.​ This is the first biomarker capable of identifying people with Parkinson’s, or those at risk for Parkinson’s, through abnormal alpha-synuclein — the hallmark protein that misfolds in Parkinson’s — in the living brain.​​​​​​ ​​ ​

Data Submission Deadlines:

​ ​*For inpatient settings, the discharge date may be used as the date of the patient encounter. 

Note:  CPDR will continue to accept case reports from previous reporting periods.

Fact Sheets

• California Parkinson’s Disease Registry (CPDR) Program Summary, March 2024​​​  (pdf 301 KB)
  
• California Parkinson’s Disease RegistryProgram Summary, April 2022 (pdf 403 KB)
  
• California Parkinson’s Disease Registry Program Summary, February 2021 (pdf 346 KB)
• California Parkinson's Disease Registry Program Summary, June 2020 (pdf 375 KB)
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