Joint Committee Meeting

Wednesday, May 8, 2024​

9:00 AM

3701 N Freeway Blvd.

Sacramento, CA 95834

 Microsoft Teams Meeting Link:

Click here to join the meeting

Meeting ID: 293 389 042 713
Passcode: 8yaTQr

Or Call In (Audio Only):

Call-In Number:  (916) 306-8051

Access Code:  685-221-590#

Agenda

Call to Order and Roll Call
 

Approval of Prior Meeting Minutes – April 10, 2024
 

Consent Calendar - Attachment 1
 

Discussion Items - New Business - Attachment 2
 

Informational Items

State Registrar's Response to VSAC Recommendations - Attachment 3

Data Requests Approved in the Health Information and Research Section - Attachment 4
 

Public Comment/Discussion

Adjournment
 

Vital Statistics Advisory Committee (VSAC) and

Vital Records Protection Advisory Committee

Joint Meeting Minutes

Wednesday, April 10, 2024

 9:00 AM

The meeting was called to order by Amanda Jackson at 9:02 am. The following members were present via Microsoft Teams:​

Linda Remy, University of California (UC) San Francisco

Aryana Amoon, Los Angeles County Department of Public Health

Melanie Moreno, Senate Committee on Health

Emily Putnam-Hornstein, University of Southern California​

The following members were not present:

Chris Krawczyk, Department of Healthcare Access and Information

Deborah Karasek, UC Berkeley

Rebecca Baer, UC San Diego

The following California Department of Public Health (CDPH) staff were present:

Michelle Miles, Vital Records Branch Chief

Joshua Endow-Monteiro, PhD, Center for Health Statistics and Informatics' (CHSI) Science Advisor

Daniel Choe, Associate Governmental Program Analyst, (RAB), CHSI

Amanda Jackson, Associate Program Analyst, RAB, CHSI

Kanyeemengtiang Yang, Data Specialist, RAB, CHSI

Pam Sheng, Research Data Specialist, RAB, CHSI

Ngoc Nham, Research Data Analyst II, RAB, CHSI

Heather Fukushima, Health Program Specialist, RAB, CHSI

Senate Bill 544: New Bagley-Keene Open Meeting Act Requirement

Effective January 1, 2024, Senate Bill 544 requires all voting VSAC members to use their computer or laptop camera and be in view for all future meetings. Attending members were in view on their respective computers.

Approval of Prior Meeting Minutes – April 10, 2024

Discussion:  None

A MOTION was made by Melanie Moreno and SECONDED by Aryana Amoon to approve the meeting minutes. Emily Putnam-Hornstein, Melanie Moreno, Linda Remy and

Aryana Amoon voted to approve the minutes. ​

Consent Calendar - Attachment 1

Project Title:  Health Equity in Fertility Specialty Care Among Cancer Survivors

Principal Investigator:  Jose Rauh-Hain, MD, Anderson Cancer Center

CDPH Order Number:  24-02-0082

Project Type:  Continuing

Data Requested:  2004-2012 Patient Discharge Data Linked to Birth Cohort Data

Staff Comments:  None

Project Title:  Geographical Assessments of Environmental Data and Its Use in Epidemiology Studies of Childhood and Young Adult Cancers

Principal Investigator:  Joseph Wiemels, PhD, University of Southern California

CDPH Order Number:  21-09-0405

Project Type:  Continuing

Data Requested:  No New Data Requested

Staff Comments:  Adding UC Berkeley Data Center, Staff Changes, Modification of Study Procedures

A MOTION was made by Melanie Moreno and SECONDED by Emily Putnam-Hornstein to approve the release of the data. Emily Putnam-Hornstein, Melanie Moreno, Linda Remy and Aryana Amoon voted to approve the release of the data.
​

Discussion Items - New Business - Attachment 2

Project Title:  RSBCIHI Tribal MIECHV Needs Assessment: Birth Indicators

Principal Investigator:  Nancy Reifel, Riverside San Bernardino County Indian Health Inc.

CDPH Order Number:  24-01-0030

Project Type:  New

Data Requested:  2019-2022 Birth Data

Staff Comments:  None

A MOTION was made by Linda Remy and SECONDED by Emily Putnam-Hornstein to approve the release of the data. Linda Remy, Emily Putnam-Hornstein, Melanie Moreno and Aryana Amoon voted to approve the release of the data.​

Informational Items

Attachment 3 - State Registrar's Response to VSAC Recommendations

Discussion:  None

Attachment 4 - Recap of Data Requests Approved in the Health Information and Research Section

Discussion:  None

Discussion/Public Comment

Discussion:  None

Adjournment

A MOTION was made by Linda Remy and SECONDED by Emily Putnam-Hornstein to adjourn the meeting. Emily Putnam-Hornstein, Melanie Moreno, Linda Remy and

Aryana Amoon voted to adjourn the meeting. The meeting adjourned at 9:09 am.

Attachment 1 - Consent Calendar

No projects for review.

Attachment 2 – Discussion Items – New Business

The following project was reviewed by the Data Analytics Section and requires VSAC review and recommendation:

Project Title:  Pilot Study of Trends and Risks in Gestational Diabetes
Principal Investigator:  Monique Hedderson, Kaiser Permanente Northern California
CDPH Order Number:  21-04-0180
Project Type:  Continuing

Data Requested:  1995-2025 Birth Data

Staff Comments:  Change in principal investigator, additional data variables

Project Title:  Data Exchange of The 2022 Fetal Death Statistical Master File (FDSMF) and 2022 California Birth Cohort File (CBCF) for Public Health Surveillance and Program Evaluation in the California Department of Public Health, Maternal, Child and Adolescent Health Division (MCAH)

Principal Investigator:  Jennifer Troyan, MPH, CDPH, MCAH

Order Number:  24-01-0013

Project Type:  New

Data Requested:  2022 Birth Cohort Data, 2022 Fetal Death Data

Staff Comments:  None

Attachment 3 – State Registrar's Response to VSAC Recommendations

The State Registrar responded the projects listed below:

Project Title:  Examination of Social, Geographic, and Policy Determinants of Preterm Birth in California

Principal Investigator:  Laura Jelliffe, PhD, University of California, San Francisco
CDPH Order Number:  18-11-0215
Project Type:  Continuing
Data Requested:  2024 Birth Data, 2023-2024 Birth Cohort Data, 2024 Death Data, and 2021-2024 Fetal Death Data
Staff Comments:  None
VSAC Recommendation: Approved
State Registrar's Action: Approved

 
Project Title:  Birth Defects Whole Exome Sequencing
Principal Investigator:  James Mills, MD, MS, National Institutes of Health
CDPH Order Number:  18-10-0212
Project Type:  Continuing
Data Requested:  No New Data Requested
Staff Comments:  Replacing the PI and Changing the Original PI to Co-PI Status
VSAC Recommendation: Approved
State Registrar's Action: Approved

 
Project Title:  Local Community Health Needs Assessment Data
Principal Investigator:  Warren Jensen, BA, Gary Bess Associates
CDPH Order Number:  19-02-0024
Project Type:  Continuing
Data Requested:  2022 Birth Data and 2022 Death Data
Staff Comments:  None
VSAC Recommendation: Approved
State Registrar's Action: Approved
 

Project Title:  Language Development in Infants

Principal Investigator:  Toben Mintz, PhD, University of Southern California
CDPH Order Number:  24-01-0024
Project Type:  New
Data Requested:  2023-2026 Birth Data and 2023-2026 Death Data
Staff Comments:  None
VSAC Recommendation: Approved
State Registrar's Action: Approved

Project Title:  Adverse Reproductive Health Outcomes and Exposure to Drinking Water Violation in Pregnant Women
Principal Investigator:  Maura Allaire, PhD, University of California, Irvine
CDPH Order Number:  23-04-0181
Project Type:  Continuing
Data Requested:  2007-2022 Birth Data
Staff Comments: None
VSAC Recommendation: Approved
State Registrar's Action: Approved

Attachment 4 – Data Requests Approved in the Data Analytics Section

No projects were approved.

​