California Newborn Screening Program

Educational Materials (PDF format)

Title of Material ... Languages available

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Important Information For Parents of Infants Who Have Not Yet Had the Newborn Screening Test (PDF, English)   ...Spanish 

Parents' Guides: 

• Parents' Guide to PKU (PDF) 
• Parents' Guide to Galactosemia - Part 1 (PDF) 
• Parents' Guide to Galactosemia - Part 2 (PDF) 
• Parents' Guide to GA - 1 (PDF, 1.5 MB)
• Parents' Guide to GA - 2 (PDF, 1 MB)
• Parents' Guide to 3MCC Deficiency (PDF)
• Parents' Guide to Arginase Deficiency (PDF)
• Parents' Guide to MMA (PDF)
• Parents' Guide to MSUD (PDF)
• Parents' Guide to PA (PDF)
• Parents' Guide to VLCADD (PDF)
• Parents' Guide to MCADD (PDF, English)  ... Spanish
• Parents' Guide to SCADD (PDF, English)  ... Spanish
• A Parents' Guide to Primary Congenital Hypothyroidism (PDF, English)  ... Spanish
• A Parents' Guide to Congenital Adrenal Hyperplasia (PDF, 1 MB, English)  ... Spanish (1 MB)
• A Parents' Handbook for Sickle Cell Disease - Part I (Birth to Six Years of Age) (PDF)  
• A Parents' Handbook for Sickle Cell Disease - Part II (Six to Eighteeen Years of Age) (PDF, 2.1 MB)
• Parents' Guide to Hemoglobin H Disease (PDF, English)  ... Laotian
• Parents' Guide to Biotinidase (PDF)
• Parents' Guide to Cystic Fibrosis (PDF) English  ... Spanish

 Hemoglobin Trait:

• For Parents of Babies with Sickle Cell Trait or Another Hemoglobin Trait (PDF, English)  ... Spanish
• For Parents of Babies with Sickle Cell Trait (PDF, English)  ... Spanish
• For Parents of Babies with Hemoglobin C Trait (PDF, English)  ... Spanish
• For Parents of Babies with Hemoglobin D Trait (PDF, English)  ... Spanish
• All You Wanted to Know About Sickle Cell Trait (PDF, English)  ... Spanish
• Sickle Cell Trait Sickle Cell Disease, What is The Difference? (PDF, English)  ... Spanish

Maternal PKU:

• Women with PKU (PDF)
• PKU, Pregnancy and You (PDF)