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California Newborn Screening Program

Newborn Screening Follow-up of Hemoglobin Traits

Parents of infants identified with sickle cell trait, hemoglobin C trait and hemoglobin D trait can learn more important information about hemoglobin traits by calling the hemoglobin trait toll free number at 1-(866)-954-2229. 

Hemoglobin is found in the red blood cells of all people. It gives blood its red color and carries oxygen to all parts of the body.  If you receive a trait notification letter from the Newborn Screening Program, it means that your baby is a carrier of sickle cell trait or another hemoglobin trait.  A trait IS NOT A DISEASE, and will not cause your baby to become ill.

Traits are passed down in the family from parent to child. If BOTH parents have a trait their next child may have a serious health problem. A special blood test can tell if both parents have a trait.

  • Information and free testing are available by calling the Newborn Screening Sickle Cell Trait Counselor toll-free at 1-(866) 954-2229. All of the services are confidential. When you call, please give the Sickle Cell Trait Counselor the service number listed in your trait notification letter.
  • If you received a trait notification letter, information has also been sent to your baby's doctor. Please take the letter with you to the baby's next appointment and discuss it with your doctor.
  • If you think your newborn may have a hemoglobin trait, or if you have not received your trait letter and related educational materials in the mail, please call the toll free number.  

The sickle cell counselor will also assist families with referrals for local family testing available at no charge.

If you have questions about Newborn Screening trait follow-up services, please call the toll free number 1-(866) 954-2229.

Hemoglobin Consent Form (PDF) English      ... Spanish

For Parents of Babies with Sickle Cell Trait or another Hemoglobin Trait (PDF) English   ...Spanish

Hemoglobin Trait Fact Sheet for Providers (PDF) 

 
 
Last modified on: 7/25/2012 7:42 AM