California Newborn Screening Program
Frequently Asked Questions From NCAA Student Athletes About
California Newborn Screening Results for Sickle Cell Trait
Form to Request NBS Results for NCAA Requirement:
Q: How can I find out whether I was tested for sickle cell trait at birth?
A: The California Newborn Screening Program (NBS) has been screening all newborns for sickle cell disease since February 27,1990. The testing also detects healthy babies with sickle cell trait and some other hemoglobin traits. If you were born before 2/27/90, we will not have a test result for you. If you were born after that date, you can request a copy of your results from the NBS Program, your pediatrician, or the hospital where you were born.
Q: How do I obtain my results from NBS?
A: At the top of this page, you will find a link to the NCAA Student Athlete Request for Newborn Screening Hemoglobin Results form (it's named: NCAAStudentRequest_distributed.pdf). Fill it out completely and submit it using the "Submit by Email" button on the form or the "Submit Form" button that Adobe Acrobat provides. Once it is submitted, print it, sign it in ink and send it to the Genetic Disease Screening Program, Newborn Screening Branch, 850 Marina Bay Parkway, Richmond, CA 94804 or fax it to 510/412-1559.
By submitting the data online using one of the submit buttons provided, it will walk you through the process of sending us the data electronically. If you scan in the form or take a picture of the form and send that to us it will not speed up the process because we cannot capture the data electronically. We're more than happy to receive a scan or picture of your form for the original signature requirement, but know that it will considerably lengthen processing time if you do not submit the data electronically.
If you are over 18, your parents cannot request your results for you; you must sign the request form yourself. In order for us to send you your Newborn Screening results, you must send us either by mail or fax the form with an original signature. Electronic signatures are not acceptable at this time. The form is designed so that you must complete all required fields before it can be submitted online. Please know that if you chose to NOT submit the form online it will take substantially longer for you to receive your results. When we have received your online submission, we will send a confirmation (usually within a day or two of receipt). If you find you still have questions or concerns, please email us at: NCAANBSresults@cdph.ca.gov.
College Athletes Requesting NBS Sickle Cell Trait Results
Q: Will a copy of my newborn screening results meet the NCAA requirement for college student athletes to have documentation of their sickle cell trait status ?
A: Yes, it is our understanding that it will, if you were tested for sickle cell disease at birth. If you have questions about the NCAA requirements, please speak to your college athletic department.
Q: When should I request my results?
A: You should submit your request as soon as you get the information about sickle cell trait testing from your University or College. Requests will be handled in the order they are received.
Q: How long is the processing time for obtaining my results?
A: It can take up to 4 weeks (Mon-Fri) to locate and email a copy of your results. Submitting your request electronically online using one of the submit buttons provided on the form (rather than filling it out by hand and sending it via USPS or scan or fax) will greatly expedite your results. Electronically submitting your request as early as possible is the best way to ensure that your results arrive before you need to start practice at your new school.
Q: When should I call NBS to check in about my results?
A: If you have not received your results after 4 weeks, please contact us at NCAANBSresults@cdph.ca.gov .
Questions About NBS Results
Q: If I was tested at birth for sickle cell disease and trait, do I need to be tested again?
A: Usually not. The California newborn screening test for hemoglobin disorders is a very accurate test for sickle cell disease and also accurately detects sickle cell trait, and other common traits like C, D and E. However, babies who have a blood transfusion before the newborn screen may not have accurate hemoglobin screening results, so later testing is recommended. Also, there are some traits (thalassemia traits) that newborn screening does not detect. Your doctor may recommend testing for these traits if you have anemia that does not respond to iron supplements.
For more information about the issues around universal screening of athletes for sickle cell trait, we suggest reading the recommendations by the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children: